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We provide you with articles on brain science, timely topics, and healthy living for those affected by neurologic challenges or seeking better brain health.  

Profiles
By Paul Wynn

Robert Spekman Found Peace in Accepting Parkinson’s Diagnosis

Robert Spekman

Robert Spekman as a high-powered consultant before his diagnosis.

I was diagnosed with Parkinson’s disease on January 2, 1995, at the height of my academic and consulting career. I was a professor of business administration at the University of Virginia’s Darden Graduate School of Business Administration in Charlottesville and consulted with many Fortune 500 companies. I was a stereotypical high-powered consultant, dogged in pursuit of my career, often putting it before family and definitely ahead of enjoying life to the fullest.

In my drive for continued success, I ignored early symptoms such as my shaky hand when I drank from a water bottle during tennis or my awkward gait when I ran. I was unwilling to consider that anything could derail my quest for success. After my diagnosis, I was too ashamed and embarrassed to tell my friends and my two daughters. Only my wife, my parents, and my sister knew.

Otherwise, I kept my diagnosis secret for four years, a decision that left me feeling exhausted, angry, and depressed. Finally, I sought counseling from a therapist, who helped me confront my fears and accept and claim my illness. She helped me see how damaging it was to ignore my feelings about my diagnosis. Thanks to her, I was able to examine the anger, hurt, and vulnerability I had buried deep inside. I learned that my anger was really fear—fear of a future I couldn’t control.

That first step opened a door to healing. It allowed me to confide in my children about my disease and not feel embarrassed or that I was weak because of it. Before therapy, I thought having Parkinson’s made me vulnerable and less of a dad.

My healing journey continued as I embraced complementary therapies such as yoga, massage, physical therapy, meditation, and acupuncture—activities my former high-powered self would have dismissed out of hand. The new me found that yoga eased my stiffness and that meditation reduced stress and kept me centered.

Robert Spekman with his family
Spekman with his wife and three daughters.

The more I accepted my situation, the more it seemed to improve. In 2006, my symptoms improved when I underwent deep brain stimulation on the left side of my brain. Four years later, I had surgery on the right side.

After surgery, I went from taking 34 pills a day to just a couple of pills as needed. After struggling with my diagnosis and its effect on my body, I finally accepted that its progression was out of my control. Years of therapy and mediation shifted my approach toward life. I am focused more on living in the moment and less on worrying about the future.

In the years before I retired in 2014, I would speak to groups of executives about work/life balance and use my own story as an example—the hard-charging consultant whose diagnosis of Parkinson’s disease helped him slow down and appreciate life.

In facing my fate I’ve rediscovered hope. To help others do the same, I published My Journey with Parkinson’s Disease, a book that chronicles my acceptance, in 2015.