In March 2016, I was diagnosed with intracranial hypertension (IH), a neurologic condition in which there is excessive pressure within the skull from cerebrospinal fluid that surrounds the brain. The condition is also called pseudotumor cerebri, which means false tumor. My symptoms included massive headaches, blurred vision, and incapacitating dizzy spells. If untreated, the condition can lead to blindness.

After conducting a careful medical history, my neurologist determined that my IH was related to systemic lupus erythematosus, an autoimmune disease I was diagnosed with in 2015. Lupus can affect the central nervous system and cause IH. I control IH with medication and by maintaining a healthy weight.

Like many living with a chronic disease, I have good days and bad. To counter feeling down, I’ve cultivated these habits.

1. Turn on the tunes. Music soothes my soul. I have created several different types of playlists. One is comprised of inspirational songs that move me spiritually. A favorite is Stevie Wonder’s “Don’t You Worry ‘Bout a Thing.” I also love the version by Tori Kelly from the animated movie Sing. Another playlist consists of mellow tunes, such as Sting’s “Fragile,” which help me relax. If I need some get up and go, I play upbeat music such as Bruno Mars “24K Magic.”
2. Be transported by a favorite book. I have always been a lover of books. My library at home has more than 400 books. Reading a book takes me to another world. Sometimes I’ll reread something from my younger years before I was diagnosed. One of my all-time favorites is Anne of Green Gables by Lucy Maud Montgomery. Remembering a time when I was happy and healthier can lift my spirits. Watching a favorite TV show or movie or playing a game can also improve my mood.
3. Let nature do its work. When my health and the weather allow it, I love to go outside and soak up the sun. If I can’t get outside, I open my windows and let the sunshine in. Nice weather always makes me feel better, especially if I’m doing something I’m passionate about, such as gardening.
4. Call on your support team. I am never ashamed to ask for help. My support team is there for me whenever I need it. My daughters always accompany me to the hospital when I am admitted. My sister will stay overnight in the hospital with me. If I just need to talk, my daughters are only a phone call away. My husband is my anchor. He makes sure I get the rest and help I need. If you don’t have a support team at home, find a local support group related to your illness.