Caregiver Support
My mother and I were caregivers for my father, who died of Alzheimer's disease last September. We thought the cover story on Hector Elizondo (December 2023/January 2024) was insightful. If my mom didn't have my help, she might have been as overwhelmed as Elizondo's father was. Elizondo's message that caregivers need support is vital. —Christina Almeida, Roseville, CA
I'm responding to the story in the Hector Elizondo feature about the new Alzheimer's medications. As a former caregiver of my wife, who died from the disease, I am skeptical of “statistically significant” results because they do not often translate into meaningful differences in the real world. Study participants taking the recently approved medications showed an extremely minor slowing of disease progression on cognitive testing. I question how much of a “clinical” difference that would have made in my wife's life or in mine. She would not have reacted well to the stress of all those additional doctor visits, hour-long infusions every few weeks, additional MRIs, PET scans, and possible spinal fluid taps. And if she had any of the severe side effects—brain swelling, brain bleeding, falls—she might even have had to be hospitalized. Taking any of these new medications could have lessened whatever quality of life we still had. —Allan S. Vann, Commack, NY
MS and Exercise
I hope the story of pro basketball player Chris Wright (December 2023/January 2024) will inspire others with multiple sclerosis (MS) to explore exercise's potential to help them manage their condition. I was diagnosed with MS in June 2022, when I was 42. Exercise is a big part of my life. I do 30 minutes of cardio and 30 minutes of weights two to three times a week and feel energized instead of fatigued. Last year, I hiked down and up the Grand Canyon at a good pace with no negative consequences. I will continue to remind my doctors that I am strong and capable. —Jaimie Perkunas, Tucson
Pick and Floss
In the article on dental health (December 2023/January 2024), the use of water picks was not advised. My periodontist recommends using one with traditional flossing. Each dislodges different debris. The article shouldn't have discouraged using a pick with flossing. —Gabe Goldberg, Falls Church, VA
Protecting the Brain
In response to the editor's letter (December 2023/January 2024), I'm sharing what I do to maintain brain health. I eat a generally high-fiber, low-fat diet with only one to two glasses of wine a week. I exercise for an hour every day, by either practicing yoga, taking a brisk walk, or completing the SilverSneakers Circuit. I read for an hour before bed and do volunteer work. I also belong to several organizations where I've met like-minded people. —Anne Cross, Manchester, CT
I've done a lot in the last year to improve my physical and mental well-being. I lost 50 pounds after joining a wellness program that taught me about exercise and mindfulness and how to incorporate healthier foods. In addition to fibromyalgia and chronic fatigue syndrome, I have undiagnosed pain, which can put me in a dark place emotionally. Thanks to meditation and my faith, I have been able to manage my health problems and mental difficulties more effectively. —Cheryl Grainger, Fort Mills, SC
Virtual Fitness
Thanks for your article about online exercise classes (December 2023/January 2024). I wanted to let your readers know about another online program, Total HealthWorks. Since taking its classes—I have Parkinson's disease—I've experienced improvements in my motor symptoms as well as my cognition. There is a free trial period for those who want to give it a try. —Cliff Brockman, Ankeny, Iowa
Spinal Success Story
In 2010 and again in 2019, I had surgeries to fuse parts of my spine. Both were successful, and I was able to resume the activities I enjoyed. In February 2023 I started having new symptoms, and an MRI revealed myelomalacia (softening of the spinal cord) due to prior spinal damage and the two cervical fusions. After going through an unsuccessful spinal cord stimulator implantation and removal, I was prescribed a combination of medications, which has eased my symptoms. I encourage anyone with this condition to not give up hope. Keep moving and doing any therapies that might help. And try to remain positive. —Mark Freshwater, Reynoldsburg, OH
Epilepsy Educator
I published a memoir, Seizing Control, about my experience with epilepsy. I was diagnosed at age 6 and had seizures most of my life until I underwent two brain surgeries in 2014. I have been seizure free since. I post blogs and pieces in chat rooms to get more information out there about epilepsy. —Laura Beretsky, Somerville, MA
FROM THE EDITOR: Be sure to read our feature on the latest developments in treating epilepsy.
