Klippel-Trenaunay Syndrome

What is Klippel-Trenaunay syndrome?

Klippel-Trenaunay syndrome (KTS) is a condition that affects the development of blood vessels, soft tissues (such as skin and muscles), and bones. The disorder has three characteristic features:

• A red birthmark called a "port-wine stain"
• Abnormally overgrown, soft tissues and bones, usually in one leg but sometimes in the arms or (rarely) on the torso
• Vein malformations (deformities)

How can I or my loved one help improve care for people with Klippel-Trenaunay syndrome?

Consider participating in a clinical trial so clinicians and scientists can learn more about KTS and related disorders. Clinical research uses human volunteers to help researchers learn more about a disorder and perhaps find better ways to safely detect, treat, or prevent disease.

All types of volunteers are needed—those who are healthy or may have an illness or disease—of all different ages, sexes, races, and ethnicities to ensure that study results apply to as many people as possible, and that treatments will be safe and effective for everyone who will use them.

For information about participating in clinical research visit NIH Clinical Research Trials and You. Learn about clinical trials currently looking for people with KTS at Clinicaltrials.gov.