When were you diagnosed with multiple sclerosis?
I was diagnosed five years ago, but I had symptoms as far back as high school. I realize now that the fatigue and poor balance I attributed to a busy life and clumsiness were really the beginning signs of MS.
What symptoms motivated you to see a neurologist?
I started to notice problems with my speech when reading to my two young daughters at bedtime. At first I brushed it off as lack of sleep, too much stress, and “Mommy fog,” but when it persisted and I struggled to get words out, I went to a neurologist. It took two months to get a diagnosis, but we finally figured it out.
How are you now?
My left leg is weak, and sometimes I have weakness in my right leg. I don't use a cane consistently, but I'm close to the point where I will need to.
You've started a project called the Colors of MS. How did that come about?
I've always been artistic but never pursued it professionally. Then in early motherhood, when I felt like I was losing my identity, I ordered some paint supplies and started painting portraits. Six months later, I had a show. One month after that, I was diagnosed with MS and thought perhaps I could address my illness through art. Seeing my MRI with the lesions on my spine was traumatic for me. I had the idea to print out a copy of it and throw paint on it. When that didn't feel right, I pulled up the image and started painting my version of it, using black, red, and gold colors. The palette felt passionate, joyful, and strong. I posted it on social media, where the National MS Society shared it, and the comments began rolling in. I reached out to a few people who commented, and the idea for the project evolved from there.
What is the process for these paintings?
They are usually the result of almost half a year of conversations. I give people their choice of colors and encourage them to think of colors that make them feel hopeful or peaceful or energized. I use something called alcohol ink, which creates a chameleon effect and lends an element of surprise to the outcome. The recipients often tell me how excited they are to receive their paintings. They say it feels like a Christmas or birthday present.
What was a memorable commission?
Two sisters reached out to me. One was recovering from a traumatic brain injury; the other had recently been diagnosed with MS. They had a ton of fun choosing their colors, and when they received their paintings, they sent me a picture of them holding their paintings and smiling.
Do you have plans for this project?
I'd like to compile it into a book, with permission, of course, from the participants. Since December 1, 2021, I have painted the MRI scans of more than 300 people with neurologic conditions like MS, brain cancer, epilepsy, and traumatic brain injuries. Anyone wanting to see examples of the paintings can view my Instagram account, @LindseyJoyHolcomb. Those who might want their MRI scans painted can email me at hello@lindseyjoyholcomb.com.
Listen Now
To hear more from Lindsey Holcomb, listen to her interview on the Brain & Life podcast.
