John Creveling, 67
When were you first diagnosed with Parkinson's disease?
I went to the doctor on March 31, 2009, with what I thought was carpal tunnel syndrome. I initially laughed when I heard the diagnosis and thought, "This is definitely going to affect my riding a motorcycle into my senior years!" I always dreamed I was going to be an octogenarian riding my motorcycle across America.
How has your perspective shifted over time?
I live much more in the present, mindful of the gift of life. I take nothing for granted. This awareness of the "now" makes me feel blessed.
You've shared your artwork and photography with the public. Has your connection to art changed since your diagnosis?
I've been a hobbyist photographer for years, but before my diagnosis, I had no idea I could draw or paint. Then, about five years ago, after looking at a beautiful painting, I was inspired to try to draw a similar image, and was thrilled to discover that I could draw! Now I can't imagine my life without some form of artistic self-expression.
You are actively involved with the Parkinson's Disease Foundation. How has it benefited you?
In 2014, my wife and I participated in a three-day Parkinson's Advocates in Research training program sponsored by PDF. Everyone we talk to agrees it's time to find a cure. Yet research to find one is often delayed because of too few trial subjects. Participating in trials and increasing awareness of the importance of research helps me feel empowered.
Has anything changed in your life since the diagnosis?
My wife still expects me to do the dishes, run the vacuum cleaner, clean the house, take out the garbage, and change the cat litter, so in some ways nothing has changed, and in other ways everything has changed.
How do you stay so positive?
It's in my DNA to view the glass as half full. That's not to say that I don't have moments of frustration, because I do—sometimes just buttoning my shirt! I've learned the value of patience, and that it's okay to ask for help. I've also come to recognize that one of the few things we can control is how we respond to challenges. I don't know why I have Parkinson's, but I know how I want to respond to it: by being in control of my attitude and my beliefs, and living every day as best I can.
