If a neurologic condition has left you with impaired vision, here are some ways to protect your remaining vision and deal with any limitations.
Manage risk. If you have vision loss in one eye, you'll want to do everything possible to preserve the other eye's optic nerve. “See your neurologist frequently to make sure you don't have any markers of relapsing disease that could damage the vision in your other eye,” says Michael Levy, MD, PhD, FAAN, research director of the division of neuroimmunology and neuro-infectious diseases at Massachusetts General Hospital. And be cautious about activities that could injure an undamaged eye, such as high-impact sports. Visit your ophthalmologist regularly as well to check for common eye conditions like glaucoma, cataracts, and retinal disease.
Modify activities. Give your eyes a break by listening to audiobooks instead of reading. “That was a big transition for someone who loves books and the whole process of reading,” says Brian Dawson, a former librarian who was diagnosed with a rare neuro-inflammatory disorder that affects his vision, “but it allows me to still enjoy literature.” Organizations such as VisionAware can connect you with low-vision rehabilitation programs and services, including specialists who can assess your needs, provide advice on adapting your environment, and give you options for devices to help you with everyday activities. The American Academy of Ophthalmology also offers a list of resources.
Listen to your body. “Be alert to any signs of vision changes, and consult with your doctor immediately,” says Dr. Levy. Eye issues can be warning signals.
Pace yourself. “Try not to compare yourself with who you were pre-illness,” says Dawson. “Advocating for yourself—going through appointment after appointment and arguments with doctors and insurance companies—can be exhausting. Remind yourself that the process is like a marathon.”
Take time off if needed. The Americans with Disabilities Act (ADA) protects people with visual disabilities in the workplace. For more about this law and the reasonable accommodations you can request at work, including taking time off, visit the Equal Employment Opportunity Commission's website.
Read More
