Neurodegeneration with Brain Iron Accumulation

Easter Seals

Provides services to help children and adults with disabilities and/or special needs as well as support to their families. Supports the National AgrAbility Project, a program for farmers, ranchers, and farm workers with disabilities.

Website

http://www.easterseals.com

Phone

800-221-6827

Address

141 Jackson Highway
Suite 1400A
Chicago,
IL 60604

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

http://rarediseases.org

Phone

203-744-0100; Voice Mail: 800-999-NORD (6673)

Address

55 Kenosia Avenue
Danbury,
CT 06810

NBIA Disorders Association

Dedicated to providing assistance to families affected by neurodegeneration with brain iron accumulation (formerly called Hallervorden-Spatz Syndrome) through support for research and educating the public.

Website

http://www.NBIAdisorders.org

Phone

619-588-2315

Address

2082 Monaco Court
El Cajon,
CA 92019-4235