Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
13140 Coit Road
Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.
1550 Crystal Drive, Suite 1300
Non-profit organization that provides individuals and families with a support network; promotes public and professional education about the disorder, and promotes and funds research.
P.O. Box 147
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
203-744-0100; 800-999-6673; 844-259-7178 Spanish
55 Kenosia Avenue