Children's Craniofacial Association

Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.

Website

http://www.ccakids.com

Phone

800-535-3643; 214-570-9099

Address

13140 Coit Road
Suite 517
Dallas,
TX 75240

March of Dimes

Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.

Website

https://www.marchofdimes.org/

Phone

888-MODIMES (663-4637)

Address

1550 Crystal Drive, Suite 1300
Arlington,
VA 22202

Moebius Syndrome Foundation

Non-profit organization that provides individuals and families with a support network; promotes public and professional education about the disorder, and promotes and funds research.

Website

https://moebiussyndrome.com

Phone

844-663-2487

Address

P.O. Box 147
Pilot Grove,
MO 65276

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

https://rarediseases.org

Phone

203-744-0100; 800-999-6673; 844-259-7178 Spanish

Address

55 Kenosia Avenue
Danbury,
CT 06810-1968