Mitochondrial Myopathies
Child Neurology Foundation
Nonprofit advocacy organization committed to serving as a collaborative center of education and support for childrne and families living eith neurologic conditions.
Website
http://www.childneurologyfoundation.org/
Phone
612-928-6325
Address
201 Chicago Avenue, Suite 200
Minneapolis,
MN 55415
MitoAction
Works to improve quality of life for adults and children affected by mitochondrial disease and to raise awareness about mitochondrial disorders and their relationship to other diseases.
Muscular Dystrophy Association
Voluntary health agency that fosters neuromuscular disease research and provides patient care funded almost entirely by individual private contributors. MDA addresses the muscular dystrophies, spinal muscular atrophy, ALS, Charcot-Marie-Tooth disease, myasthenia gravis, Friedreich's ataxia, metabolic diseases of muscle, and inflammatory diseases of muscle, for a total of more than 40 neuromuscular diseases.
Website
Phone
800-572-1717
Address
National Office - 222 S. Riverside Plaza
161 N. Clark, Suite 3550
Chicago,
IL 60601
United Mitochondrial Disease Foundation
Promotes research for cures and treatments of mitochondrial disorders and provides support for affected families. Represents adults and children alike and continues to serve families with a variety of programs.
Website
Phone
412-793-8077; 888-317-UMDF (8633)
Address
8085 Saltsburg Road
Suite 201
Pittsburgh,
PA 15239