March of Dimes

Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.

Website

https://www.marchofdimes.org/

Phone

888-MODIMES (663-4637)

Address

1550 Crystal Drive, Suite 1300
Arlington,
VA 22202

Muscular Dystrophy Association

Voluntary health agency that fosters neuromuscular disease research and provides patient care funded almost entirely by individual private contributors. MDA addresses the muscular dystrophies, spinal muscular atrophy, ALS, Charcot-Marie-Tooth disease, myasthenia gravis, Friedreich's ataxia, metabolic diseases of muscle, and inflammatory diseases of muscle, for a total of more than 40 neuromuscular diseases.

Website

https://www.mda.org/

Phone

800-572-1717

Address

National Office - 222 S. Riverside Plaza
161 N. Clark, Suite 3550
Chicago,
IL 60601

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

http://rarediseases.org

Phone

203-744-0100; Voice Mail: 800-999-NORD (6673)

Address

55 Kenosia Avenue
Danbury,
CT 06810