Collaborative initiative created to gather, analyze, and share information about HPE. Maintains an international registry and an ongoing HPE database. Supports and conducts research and maintains a network of Centers of Excellence.
c/o Texas Scottish Rite Hospital
2222 Welborn Street
Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.
1550 Crystal Drive, Suite 1300
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
203-744-0100; 800-999-6673; 844-259-7178 Spanish
55 Kenosia Avenue
Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
1825 K Street, NW