Cerebral Cavernous Malformation

Angioma Alliance

Non-profit charitable organization created by people affected by cavernous angiomas. Provides education and support and promotes research.

Website

https://www.angioma.org

Phone

866-HEAL-CCM (432-5226); 757-623-0615

Address

520 W. 21st Street
Suite G2-411
Norfolk,
VA 23517

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

https://rarediseases.org

Phone

203-744-0100; 800-999-6673; 844-259-7178 Spanish

Address

55 Kenosia Avenue
Danbury,
CT 06810-1968

Nevus Outreach, Inc

Nevus Outreach is dedicated to: improving awareness and providing support for people affected by congenital pigmented nevi, and finding a cure.

Website

https://www.nevus.org

Phone

918-331-0595

Address

361 Southwest Drive
Jonesboro,
AR 72404