Non-profit charitable organization created by people affected by cavernous angiomas. Provides education and support and promotes research.
866-HEAL-CCM (432-5226); 757-623-0615
520 W. 21st Street
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
203-744-0100; 800-999-6673; 844-259-7178 Spanish
55 Kenosia Avenue
Nevus Outreach is dedicated to: improving awareness and providing support for people affected by congenital pigmented nevi, and finding a cure.
361 Southwest Drive