Batten Disease Support and Research Association

International support and research networking organization for families of children and young adults with Batten Disease. Sponsors education, advocacy, and support programs. Funds research, and sponsors a tissue donation program.

Website

https://bdsra.org

Phone

800-448-4570

Address

2780 Airport Drive, Suite 342
Columbus,
OH 43219

Children's Brain Disease Foundation[A Batten Disease Resource]

National not-for-profit organization that raises funds for medical research into the causes and treatments of Batten disease, also known as Neuronal Ceroid Lipofuscinosis.

Website

Phone

415-665-3003

Address

Parnassus Heights Medical Building, Suite 900
Suite 900
San Francisco,
CA 94117

Hide and Seek Foundation for Lysosomal Storage Disease Research/SOAR

Nonprofit that raises awareness and supports research to find treatments and cures for lysosomal disorders.

Website

https://hideandseek.org/

Phone

844-762-7672

Address

6475 East Pacific Coast Highway
Suite 466
Long Beach,
CA 90803

Nathan's Battle Foundation[For Batten Disease Research]

Foundation established to aid in the development of therapies for Late Infantile Batten Disease.

Website

http://www.nathansbattle.com

Phone

317-888-7396

Address

459 State Road 135 South
Greenwood,
IN 46142