Ataxias and Cerebellar or Spinocerebellar Degeneration

Friedreich's Ataxia Research Alliance (FARA)

National non-profit organization dedicated to the pursuit of educational, scientific and research activities leading to treatments for Friedreich's ataxia.

Website

https://www.CureFA.org

Phone

484-879-6160

Address

533 W. Uwclan Avenue
Downington,
VA 22151

National Ataxia Foundation (NAF)

Encourages and supports research into the hereditary ataxias, a group of chronic and progressive neurological disorders affecting coordination. Sponsors chapters and support groups throughout the U.S.A. and Canada. Publishes a quarterly newsletter and educational literature on the various forms of ataxia.

Website

http://www.ataxia.org

Phone

763-553-0020

Address

600 Highway 169 South
Suite 1725
Minneapolis,
MN 55426

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

https://rarediseases.org

Phone

203-744-0100; 800-999-6673; 844-259-7178 Spanish

Address

55 Kenosia Avenue
Danbury,
CT 06810-1968