National non-profit organization dedicated to the pursuit of educational, scientific and research activities leading to treatments for Friedreich's ataxia.
533 W. Uwclan Avenue
Encourages and supports research into the hereditary ataxias, a group of chronic and progressive neurological disorders affecting coordination. Sponsors chapters and support groups throughout the U.S.A. and Canada. Publishes a quarterly newsletter and educational literature on the various forms of ataxia.
600 Highway 169 South
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
203-744-0100; 800-999-6673; 844-259-7178 Spanish
55 Kenosia Avenue