Aicardi Syndrome Foundation

Information gathering and sharing resource for professional and health care personnel and Aicardi syndrome families. Sponsors a biennial conference.

Website

https://ouraicardilife.org

Phone

800-374-8518

Address

P.O. Box 3202
St. Charles,
IL 60174

March of Dimes

Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.

Website

https://www.marchofdimes.org/

Phone

888-MODIMES (663-4637)

Address

1550 Crystal Drive, Suite 1300
Arlington,
VA 22202

National Eye Institute (NEI)

Website

http://www.nei.nih.gov

Phone

301-496-5248

Address

National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda,
MD 20892-2510

National Institute of Mental Health (NIMH)

Website

http://www.nimh.nih.gov

Phone

301-443-4513; 866-615-6464; 866-415-8051 (TTY)

Address

National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda,
MD 20892-9663

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

http://rarediseases.org

Phone

203-744-0100; Voice Mail: 800-999-NORD (6673)

Address

55 Kenosia Avenue
Danbury,
CT 06810

The Arc of the United States

Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Website

http://thearc.org

Phone

202-534-3700; 800-433-5255

Address

1825 K Street, NW
Suite 1200
Washington,
DC 20006