Acute Disseminated Encephalomyelitis

National Organization for Rare Disorders (NORD)

Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Website

http://rarediseases.org

Phone

203-744-0100; Voice Mail: 800-999-NORD (6673)

Address

55 Kenosia Avenue
Danbury,
CT 06810

United Leukodystrophy Foundation

Nonprofit voluntary health organization dedicated to providing patients and their families with information; assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness, and acting as an information source for health care providers. Promotes supports research into causes, treatments, and prevention of the leukodystrophies.

Website

https://ulf.org

Phone

815-748-3211; 800-728-5483

Address

224 North 2nd Street, Suite 2
DeKalb,
IL 60115